A
"Patient-Centred" Path towards Ignoring
Patient Rights
A
Critical Analysis of the Federal Senate Committee's Dismissal of
Concerns about
Involuntary Treatment Laws and Civil Rights Abuses in the Canadian
Mental
Health System
Rob
Wipond [*]
Preface
The
Canadian Standing Senate Committee on Social Affairs, Science and
Technology
released a report on the mental health system in
2006, "Out of the
Shadows
at Last: Transforming
Mental Health, Mental Illness and
Addiction Services in Canada". The Committee's central recommendation
was
that Canada create a more patient-centred mental health system. Yet,
the
Committee utterly failed to address the fundamental lack of patients'
legal
rights which drives the current, non-patient-centred system. Despite
extensive
discussions and witness testimonials that were extremely critical of
routine
involuntary psychiatric treatment and civil rights abuses in the
Canadian
mental health system, the Committee's final report included no
recommendations
in this area. Through analysis of the language, arguments and rhetoric
in the
Committee's writings, this paper demonstrates that the Senate Committee
1)
accepted uncritically numerous erroneous or unproven claims from
particular
mental health professionals about the accuracy and efficacy of
psychological
and psychiatric science, and 2) deliberately misrepresented and ignored
important civil rights issues surrounding involuntary treatment due to
their
uncritical faith in psychiatric science and deeply embedded prejudices
against
people diagnosed with mental illnesses. As a result, Canada lost an
ideal
opportunity to develop a more balanced national discussion of current
involuntary treatment laws and point towards more progressive options.
Introduction
Reports
about Canada's health care system published in 2002 by the Canadian
Standing Senate Committee on Social Affairs,
Science and Technology raised serious concerns about Canada's mental
health
care system (
Standing Senate
Committee, 2002). As a result, in
2003,
the Senate
began an investigation specifically into mental health care. Senator
Michael
Kirby was appointed to chair the investigation, leading research and
consultations over the next three years. Three "interim" mental
health reports were released in November of 2004. In May of 2006, the
Standing
Senate Committee on Social Affairs, Science and Technology released its
concluding report, referred
to here as the "Final
Report", "Out of the Shadows at Last:
Transforming Mental Health, Mental Illness
and Addiction Services in Canada" (
Standing Senate Committee, 2006).
This
Final Report lacked any specific legal
authority, and acknowledged that health care was primarily under the
jurisdiction of provincial and territorial governments rather than the
federal
government. Nevertheless, its approximately six hundred pages
represented the
most extensive overview of mental health services ever done in Canada,
and were
intended to provide a guiding roadmap for reform. One of the principle
recommendations, the creation of a Mental Health Commission of Canada
to help
further the Final Report's other recommendations, was enacted by the
federal
government in March of 2007 and Michael Kirby was named Chair of the
new
Commission. Since then, over $200 million in federal funding has
strengthened
the Mental Health Commission's growing role in helping set agendas and
conduct
and guide policies and programs across the country (
Mental Health
Commission of
Canada, 2008).
Overview:
The Final Report's Central
Recommendation and the Key Missing Element
The
main thrust of the Senate Committee's arguments and conclusions in the
Final
Report revolves around making Canada's mental health services more
patient-centred and focused on recovery. The section on "Vision and
Principles" concludes, "In the Committee’s view, what is needed is a
genuine system that puts people living with mental illness at its
centre, with
a clear focus on their ability to recover." (
Standing Senate Committee,
2006, p.37) Repeated critical emphasis is given throughout the
Final
Report to
the "severely limited" range of choices currently available to mental
health patients, and frequent endorsements are given to the idea of
offering
people living with mental illness "the opportunity to choose" from a
wide range of services and supports those which will "benefit them
most" (
Standing Senate
Committee, 2006, p.46). The "Summary of
Principles" section argues that mental health patients "must be
accorded equal respect and consideration" as patients suffering
physical
illnesses. In addition, the Committee writes, mental health patients
must have
full responsibility for their own recovery while utilizing to their own
benefit
"collaboration" from friends, family, the community, and mental
health professionals. The Committee declares, "It is people living with
mental illness themselves who should be, to the maximum extent
possible, the
final arbiters of the services that are made available within the
overall
mental health system and of the ways in which they are delivered."
(
Standing Senate Committee,
2006, p. 57-8).
In
this context, well-established tenets of patient empowerment, such as
different
therapeutic options, housing, employment, community supports, peer
support
networks, and patient involvement in policy and program design, are
repeatedly
described as central to reforming the mental health system, and are
given
strong endorsements in the Committee's recommendations.
There
is, however, a major block standing in the way of literally every type
of
patient-centred or patient-empowered reform which the Committee
proposes. In
every jurisdiction in Canada, people who have been diagnosed with
mental
illnesses are potentially subject to involuntary committal laws that
can remove
from them most of the civil rights and powers which ordinary citizens
take for
granted. Mental health patients can be certified under mental health
legislation and stripped of many powers to make decisions for
themselves both
inside and outside of hospitals, and even when these powers are not
stripped
from them, they must nevertheless live with the constant threat that
such an
event could occur at any time relatively quickly and easily. A person
may be
involuntarily committed and incarcerated in a psychiatric hospital
and/or made
subject to involuntary outpatient treatment orders while living in the
community if he or she is threatening bodily harm to others. However,
in most
jurisdictions in Canada today, a person may also be certified "in the
interests of the person’s own safety or the safety of others" (
Province
of
New Brunswick, 1973, s.7.1) or, quite simply, if the person is
deemed
to be in
danger of mental or physical "deterioration" or
"impairment" if left untreated (
Province of British
Columbia, 1996,
s.22;
Province of Ontario, 2004,
s.19;
Province of Manitoba, 1998,
s.8.1).
Meanwhile, no jurisdiction in Canada provides any legal or scientific
criteria
for what exactly in this context constitutes "safety",
"deterioration", or "impairment", or even provides a legal
definition or scientific reference for what constitutes a mental health
examination or a mental illness. So in practical terms, the treating
psychiatrist renders final judgments about any particular patient's
status
under involuntary committal laws with wide-ranging personal and
professional
discretion. A second psychiatrist's signature is typically required for
longer
term certifications, but according to legislation this can usually be a
routine
sign-off by the director of the treating hospital.
The
rights of people who are involuntarily committed vary somewhat amongst
jurisdictions. Generally, individuals may be restrained, incarcerated
and, in
most Canadian jurisdictions, forcibly treated with chemical,
electro-convulsive, or other interventions for periods of weeks or
months,
while certification renewals can extend committal orders essentially
indefinitely. Certified mental patients typically have limited access,
or in
some cases no access at all except by extraordinary measures, to legal
advocates, appeal procedures, or the court system.
Involuntary
committals and involuntary treatment are not rare; indeed, involuntary
committal and coercion into treatment under the threat of involuntary
committal
are a principal component of the daily routine of psychiatric hospitals
and the
mental health system in Canada. (
Sklar, 2004;
Wipond, 1998a;
Wipond,
1998b).
Clearly,
then, no serious discussion of empowering mental health patients to
choose
their own strategies for recovery can take place without addressing the
fact
that these same people can be and regularly are stripped of many rights
and
powers of decision-making over their own treatment or recovery by their
treating psychiatrists. However, "Out of the Shadows at Last" leaves
this entire, absolutely central conundrum largely unaddressed.
Careful
review of the discussions about the legal and civil rights of patients
in the
mental health system in the Senate Committee's interim reports, in the
testimonials from witnesses, and in the Final Report, demonstrate that
this
omission was deliberate. While the Committee apparently wanted to give
a public
show of support towards empowering patients in their own recoveries, in
fact,
the Committee chose to distort, ignore and ultimately purge extensive
testimony
about widespread and routine abuses of the civil rights of mental
patients in
Canada, and instead gave much weightier support to particular mental
health
professionals who strongly advocated for forced treatment and reduced
patient
powers. Ultimately, this undermines the central stated intent of "Out
of
the Shadows at Last" and, rather than helping mental health patients
actively guide their own recoveries, provides a template for an even
broader
assault on civil rights in Canada.
Overview
of the Interim Reports
The
Committee released three
interim reports in November of 2004. Interim Report 2 is
an overview of mental health programs in selected other countries and
is not
pertinent to this discussion. However, Interim Report 1, "Mental
Health, Mental
Illness and Addiction: Overview of Policies and Programs in Canada"
(
Standing
Senate Committee, 2004a), and Interim Report 3, "Mental Health,
Mental
Illness and Addiction: Issues and Options for Canada" (
Standing Senate
Committee, 2004b),
are key to understanding the arc of the
Committee's attitudes about involuntary treatment that ultimately led
to the
Final Report.
Analysis
of Interim Report 3
The
purpose of Interim
Report 3, writes the Committee, is "to
outline the major issues facing the provision of mental health services
and
addiction treatment in Canada, to present potential policy options to
address
some of these issues, and to launch a public debate to enable Canadians
to
provide input on how the issues should be addressed." (
Standing Senate
Committee, 2004b, p.1) In this
report, the template is outlined for the primary topics which
will be explored at greater length in Interim Report 1 and then brought
towards
recommendations for reform in the Final Report. There are chapters
dedicated to
financing of mental health, jurisdictional authorities of the various
levels of
government, the needs of specific population groups, workplace issues,
the
state of scientific research etc. Issues
surrounding mental
health law and involuntary treatment are only hinted at briefly in
Interim
Report 3. In chapter one, "A Patient/Client-Centered System Oriented
Toward Recovery and With Personalized Care Plans", the Committee notes
that "Providing services and supports that are tailored to meet
individual
needs is fundamental to recovery." (
Standing
Senate Committee, 2004b, p.6)
Later in that same section, the Committee writes,
"Accordingly, how can a patient/client oriented system ensure an
appropriate balance between the rights of individuals with severe
mental
disorders and the role of society in caring compassionately for them
while also
protecting itself?" (
Standing
Senate Committee, 2004b, p.6) This
crucial
topic of involuntary treatment and the balancing of rights is developed
more in
Interim Report 1.
Analysis
of Interim Report 1
In Interim
Report 1, the
Committee discusses involuntary treatment within a number of distinct
sections
dealing with a variety of legal and ethical issues. Along with these
sections,
it is also vital to examine how the Committee handled the issues of
psychological and psychiatric science and the biomedical theory of
mental
illness, because these subjects are tightly interwoven with the ethical
issues
surrounding involuntary treatment. Clearly, as long as one believes
fully that
psychological disturbances are biological diseases of the brain, then
treatment
of those disturbances, even if it is against people's wills, seems to
be
fundamentally and finally a health care issue; the operational analogy
becomes
not that of a protester being dragged to prison to be tortured, but
that of an
unconscious car accident victim being rushed to hospital for
life-saving
surgery. The choice of analogy then dramatically affects the ensuing
discussion
of the ethical issues surrounding treatment without consent.
At
no point in any of the reports does the Committee grapple with any
scientific
details. Specific diagnostic categories are never critically examined,
particular drugs or other extant treatments like electroconvulsive
therapy or
lobotomy are never discussed, and the deeply radical differences and
conflicts
between different schools of psychiatry and psychology are never
mentioned.
When the Committee briefly reviews various types of mental illness, it
does so
by uncritically utilizing currently popular psychiatric diagnostic
manuals, and
without reviewing either what the most common treatments are in Canada
today or
the often-poor outcomes associated with them (
Standing Senate
Committee, 2004a,
p.67-72). In Chapter 10 (
Standing
Senate Committee, 2004a, p.215-230),
the
Committee summarizes that science "has advanced our understanding" of
mental illnesses, and that we are now "closer to understanding” them.
In
that growing understanding, the Committee argues, “research . . .
plays an
important role” and we “should devote additional funding” and develop
improved
“best practices”.
The
lack of detail in all of these sections is inscrutable. While
acknowledging a
dearth of "best practices" guides in mental health, the Committee
provides no discussion or commentary on which experts or areas of
expertise
should lead development of these documents. When advocating for more
funding
for scientific research, the Committee recognizes the prominent role
that
pharmaceutical companies are currently playing, yet does not even
acknowledge
the deep, widespread controversy about this role that has arisen in
public,
government and scientific debates in medical journals in recent years
(
Milloy,
2001). The Committee also chooses its language carefully; for
example,
it is
not that we
do not understand mental illness, but we are
"closer to
understanding" it. All together, this repeated lack of any truly
critical
approach to the arguably anemic state of the science of mental illness
provides
tacit support to the current dominant paradigm and most powerful
(through
mental health legislation) leaders in the Canadian mental health
system:
psychiatrists and the biomedical model of mental illness. This tacit,
implicit
bias is further evidenced when the Committee does step a little closer
towards
specifics. Then, the Committee's statements frequently lapse into pure
hubristic support for common, unscientific, unproven claims of average
mental
health professionals. For example:
"The
benefits of early
intervention extend to numerous mental illnesses and to individuals of
all age
groups. Without early intervention and treatment, child and adolescent
disorders frequently continue into adulthood. If the system does not
appropriately screen and treat them early, these childhood disorders
are likely
to persist and lead to a downward spiral of school failure, poor
employment
opportunities, and poverty in adulthood. No other set of illnesses
damage so
many children so seriously." (
Standing Senate Committee,
2004a, p.166)
It is
unclear where this
series of extraordinary claims came from -- in this and in the Final
Report where
the claims are repeated, no scientific citations are provided. The
remarks do
strongly resemble claims made commonly in position statements by
prominent
Canadian mental health organizations with whom the Committee consulted,
like
the Schizophrenia Society's position paper on early intervention in
schizophrenia (
Schizophrenia
Society, 2008). However, according to the
Cochrane
Review on early intervention for psychosis, for example, there were
"insufficient trials to draw any definitive conclusions" (
Marshall and Rathbone, 2006).
In the few trials there were, the researchers
found
"no difference between intervention and control groups".
Significantly, the British Columbia Branch of the Canadian Mental
Health
Association (CMHA-BC) found in their own early intervention study in
1998 that
"nearly half of participants received an incorrect diagnosis"
(
Macnaughton, 1998, p.7), and
consequent unhelpful treatment programs. No
objective
rationale is provided to presume the psychiatrists making the second
diagnoses
were any less prone to error than the initial psychiatrists, so from a
patient
perspective this study suggested an error rate in early intervention
closer to
75%, essentially dramatically undermining altogether the scientific
validity of
psychiatric diagnoses in early intervention. Nevertheless, in testimony
to the
Senate Committee, CMHA-BC indicated they found "challenges" with
early intervention in their study, but did not elaborate, and they
still
endorsed more early intervention (
Canadian
Mental Health Association-BC
Division, 2005, p.5). All of these scientific uncertainties were
brought to
the
Committee's attention prior to the reiteration of the erroneous claims
in the
Final Report (
Wipond, 2005).
The
Committee's unjustified,
uncritical faith in the efficacy of psychiatric and psychological
science
emerges even more in discussions about the ethics of involuntary
treatment,
where their logical arguments are heavily steeped in the language and
conceptual frameworks of the biomedical model of mental illness and its
rationalizing
ontology for psychiatric intervention by force.
In Section
8.3, "Mental
Health Legislation", discussion of involuntary treatment occupies the
entire six pages of this section of the 250-page report. The Committee
writes
that, "Mental health legislation is also meant to reflect a balance
between the rights and dignity of the individual, the protection of
society,
and society’s concern to help those not able to help themselves."
(Standing Senate Committee, 2004a, p.167) This apparent sensitivity to
achieving
a "balance" of rights, is followed immediately by a highly debatable
assertion presented as unequivocal fact, thereby setting the tone for
much of
what is to come:
"In fact, all
provincial and territorial legislation must comply with the
Canadian
Charter
of Rights and Freedoms." (
Standing Senate Committee,
2004a, p. 167).
In fact, whether or not
Canada's mental health laws comply with the Charter is a matter of
widespread,
ongoing debate. Even as the Committee's consultations were going on,
for example,
a widely publicized case concerning circumstances under which an
Ontario
patient with extraordinary scientific and mathematical talent could
legally
refuse psychiatric treatments was before Canada's Supreme Court. The
case was
concluded in 2003, in favour of Scott Starson's right to refuse drug
treatments
(
Supreme Court of Canada, 2003).
Shortly thereafter, however,
circumstances
changed slightly and psychiatrists felt within their right to again
treat
Starson with drugs against his will -- highlighting even further the
contentious,
complex nature of the topic (
O'Neill
and Fischer, 2005) and the
contentious
civil rights debates that have long been common within the psychiatric
profession (
Sklar, 2004). In other
examples, a separate case
challenging British
Columbia's
Mental Health Act was in progress in BC during the
Committee's tenure (
Supreme Court
of British Columbia, 2006) and legal
and
civil liberties groups have issued statements in the past expressing
doubt that
involuntary treatment laws comply with Canadian civil rights laws
(British
Columbia Civil Liberties Association,
1965,
1976,
1983). It is
nearly
impossible to imagine that all the Committee members were entirely
oblivious to
all such debates throughout their tenure, and in any case both earlier
and
later presenters brought some of them to their attention (
Hall, 2003;
Allan,
2005;
Wipond, 2005). Evidently,
then, the Committee
chose to
assert that
there is no controversy at all on this key issue, when there is
actually
enormous controversy, and the effect is to downplay the importance of
well-articulated
Charter rights concerns surrounding
involuntary
treatment legislation.
Also
in this section, the Committee's uncritical faith in
psychiatric science is again evident in the presumptions underlying
this
assertion: "Without compulsory hospital admission and psychiatric
treatment, individuals who will not accept voluntary treatment are
abandoned to
the consequences of their untreated illness." (
Standing Senate
Committee,
2004a, p.167) In the Committee's view, apparently, psychiatrists
never
make
errors, and there are inevitable negative repercussions for disobeying
their
advice.
Such
deeply biased, loaded language is brought
even more to the fore when disparities
between involuntary treatment legislation in different
jurisdictions are discussed. The Committee cites Gray and O'Reilly:
"The criterion which limits
involuntary admission and treatment to physical harm raises ethical
issues for
psychiatrists, who may see a patient who is extremely
distressed
because of a
psychotic illness but who is not likely to be dangerous
(physically)
to
himself/herself or others. In such cases, while psychiatrists know that
treatment would be quickly effective and would relieve suffering, they
can
neither hospitalize nor treat the affected person. As a result, some
individuals with severe mental illness and in need of psychiatric
treatment
will not receive timely care." (
Standing Senate
Committee, 2004a, p.168).
The strong presumptions underlying the
choice of words
are evident:
Psychiatrists "know" that their diagnoses are always accurate. Their
treatments are always "quickly effective" and inevitably
"relieve suffering". Conversely, being able in some circumstances to
refuse their recommended psychiatric treatments means nothing other
than a loss
of "timely care" which is a "need". Are there never any
possible errors in this process? No misdiagnosed individuals? No
ineffective
drugs? Never any uncomfortable or debilitating drug side effects to
undermine
the relief of suffering? In
fact, the potentially negative side effects of most psychiatric
treatments is standard knowledge. In addition, the fundamentally
tenuous and
experimental nature of all psychiatric and psychological diagnoses and
treatments are well known. The American Psychiatric Association team
spearheading the research agenda for the next edition of the definitive
Diagnostic
and Statistical Manual of Mental Disorders has concisely summarized
this:
" . . . the goal of validating these syndromes and discovering common
etiologies has remained elusive. Despite many proposed candidates, not
one
laboratory marker has been found to be specific in identifying any of
the
DSM-defined syndromes . . . With regard to treatment, lack of
treatment
specificity is the rule rather than the exception." (
Kupfer, First and
Regier, 2002, p.xviii) So once again, the Committee
uncritically presents self-evidently non-factual, unscientific
contentions as
fact. Meanwhile,
the contrasting argument is implicitly self-evident: If psychiatric
treatments
were even
most often quickly effective and relieved suffering,
involuntary treatment would arguably have a minimal, temporary role to
play in
Canada's mental health system, rather than the ongoing, central role
that it
currently has. Involuntary treatment is a major issue because
treatments are
not effective for many people and make many people feel worse rather
than
better. Additionally, many patients loathe the common treatments and
their
damaging side effects. The fact that the Committee
ultimately ignored all of this, even though it had been iterated
frequently in
witness testimonies (see below), hints at an unshakable, underlying
bias that
becomes yet more evident as the discussion continues.
For example, this
particular section
occurs within the
context of a
lengthy attack on those jurisdictions which allow patients to refuse
treatment
under certain circumstances. The Committee cites Gray, Shone and
Liddle: “The rise in the
number of people with mental illness in prisons and homeless on the
streets is
blamed in part on laws restricting involuntary admission to the
physically
dangerous.” (
Standing
Senate Committee, 2004a, p.168) This highly
hypothetical
claim has an obvious contrary argument: Could the ineffectiveness and
damages
of psychiatric treatments themselves be partly to blame? This question
is not
discussed. Instead, the
twisting of the
discussion away from anything even remotely resembling a logical or
balanced
treatment of the issues is highlighted in yet another citation from
Gray, Shone
and Liddle: "While
compulsory treatment will usually restore someone’s freedom of thought
from a
mind-controlling illness and restore their liberty by releasing them
from
detention, their feelings of autonomy and legal and civil rights may be
impacted." (
Standing
Senate Committee, 2004a, p.167) Far from reaching
toward a "balance", this attitude completely denudes any value from
people's own perspectives once they have been labelled as mentally ill.
Whether
they have psychiatric disorders or not, most people seldom regard being
incarcerated without charge and drugged against their wills as a
"liberating" experience which restores their "freedom of
thought". The Committee is engaged here in concept-twisting at an
Orwellian level. At least in this quote there is the slightly
mitigating
inclusion of "usually", but again, the Committee fails to discuss the
tremendous significance of this qualification: What about those
"unusual" people who aren't being thus "liberated" by
compulsory treatment? Are their perspectives and experiences simply
unimportant
to this discussion?
Many
of the quotes and references throughout this section, as noted, come
from John Gray, who was previously
the Manager of Clinical Psychiatry
for the British Columbia provincial government, and was President of
the
Schizophrenia Society of Canada when he presented to the Committee
(
World
Fellowship for Schizophrenia and Allied Disorders, 2008). It is
clear, then, that rather than seek out middle ground, the Committee
actually chose
to take the side
of two prominent public symbols of the polarization of this entire
debate, a person and an agency which had been actively involved in the
expansion of
involuntary
treatment powers (Wipond, 1998b) and in the defence of those powers in
court
cases. (
Schizophrenia
Society, 2008;
Supreme Court
of BC, 2006;
Supreme
Court
of Canada, 2003). Curiously,
all of the previous discussion is somewhat contrasted by Chapter 11,
"The Question of Ethics Consent and Capacity Issues"
.
Here, the Committee notes,
"While
decision-making capacity is essential for valid consent, applicable
clinical
tests to assess competence are controversial, especially for those with
mental
illness and addiction. Determinations of decision-making capacity raise
special
issues regarding the vulnerability of those suffering from mental
disorders.
Adapting the delivery of services, as the patient fluctuates in, or
gradually
loses, his/her capacity, is a challenge for the mental health and
addiction
treatment system. Respect for the person requires that the changing or
diminishing capacity is identified and diagnosed, and that the system
adapt
accordingly, in order not to infringe unduly on the autonomy of the
person
affected." (
Standing
Senate Committee, 2004a, p.235) Of course, this
very
question of competence and capacity for decision-making is usually key
to the
practical justification for treating a person against his or her will.
So the
fact that the Committee here
acknowledges the tremendous
controversy
surrounding determinations of capacity is perplexing, in light of the
Committee's complete
lack of acknowledgement of such underlying
controversies in the preceding discussions about involuntary treatment.
After
all, if we cannot be sure when people are or are not truly incapable of
making
their own decisions, how can we be sure when it is best to treat them
against
their wills? All
together, then, Interim Report 1 makes it abundantly clear that the
Committee
understands that involuntary treatment is in any case a vital, central
issue in
the mental health system worthy of serious consideration. This is what
makes it
all the more surprising that the entire discussion is simply totally
absent
from the Final Report.
Analysis
of the Final Report
There
are three sections of the Final Report, "Out of the Shadows at Last",
which are directly pertinent to the discussion of involuntary
treatment. These
are:
Chapter 4: Legal Issues
Chapter 11: Research, Ethics and
Privacy
Appendix A: Recommendations
In addition, it is
important
to review some of the witness testimonies the Committee heard on the
topics of involuntary treatment, civil
rights, and the legal rights of mental health patients which were
critical of
the Canadian mental health system.
In
Chapter 11, "Research, Ethics and Privacy", the only ethics
discussion which takes place revolves around privacy issues related to
electronically tracking psychiatric patients and ex-patients and
sharing their
health information with others (see below).
In the
section on research,
once again there is no critical discussion of the uncertainties
underlying
psychiatric science. In sub-section 11.2.3, "Other Sources of Funding
for
Mental Health Research", the Committee discusses various government,
non-profit, and charitable agencies which support mental health
research, and
then discusses the role of the pharmaceutical industry:
"Pharmaceutical
discoveries
are an important product of research into mental illness, because drugs
are an
essential component of the treatment options for people living with
mental illness. In fact, the pharmaceutical
industry is the largest single source of funding for health research in
Canada.
In 2004, it invested $1.6 billion in health research and development,
approximately 27% of the total spent on health research in the country.
Just
how much of that funding of research by the pharmaceutical industry in
Canada
goes into mental health and addiction is not known, but it is thought
to be
substantial."
Then, far from
expressing concerns about the immense influence of these
private drug companies and the biases they bring to scientific
research, the
Committee concludes this subsection with a recommendation they be even
more
involved: "That the Canadian Institutes of Health Research actively
seek
out more opportunities for research partnerships on mental health and
addiction
with the private and not-for-profit sector." (
Standing Senate
Committee,
2006, p.257).
In the witness
testimonials,
many people expressed enormous concern about involuntary treatment. For
example, Jennifer
Chambers of the Centre for Addiction and Mental Health's Empowerment
Council
provided submissions showing a "consistent abuse of rights of people in
the mental health system" (
Chambers, 2005).
Our Voice editor
Eugene
LeBlanc provided a quote from the World Health Organization discussions
of the
rights of the mentally ill, stating that "a human rights violation . .
.
often
consists in treatment itself" (
LeBlanc, 2005).
Ron Carten of the
Vancouver-Richmond Mental Health Network argued the "inordinate
power" of psychiatrists requires "stricter oversight" (
Carten,
2005). The British Columbia Ombudsman's report on Riverview
Hospital,
which was
cited to the Committee by this author (
Wipond,
2005), found routine,
"systemic" abuses of patients' legal and human rights at BC's major
psychiatric hospital, and argued for the adoption of the Ombudsman's
own
Charter of Patient Rights (
Ombudsman, 1994).
Former BC
government-appointed
Mental Health Advocate Nancy Hall noted most provinces do not even
provide
legal advocates for people being committed. "Not only are people badly
treated, but due process is not often followed," she stated (
Hall,
2003).
Survivor-activist Francesca Allan provided the Committee with suggested
changes
to involuntary treatment laws which she had worked out with a branch of
the British
Columbia Civil Liberties Association, and noted many lawyers argue
current laws
violate Canadians'
Charter rights (
Allan,
2005).
Yet
very little of these perspectives ended up in the Final Report. In
Chapter 4, "Legal Issues", there are three section topics: access to
personal health information; charter of patients rights; mental
disorder
provisions of the Criminal Code.
In
the first section of Chapter 4, the Committee recommends that more
extensive
electronic tracking of mentally ill individuals be done, and that
governments
should make it easier for service providers to share the medical and
other
personal information of mental patients with family, other health
practitioners, police etc, even without patient consent (
Standing
Senate
Committee, 2006, pp.65-72). In a brief subsection, the Committee
also
recommends, "That provisions in any provincial legislation that have
the
effect of barring persons from giving advance directives regarding
mental
health treatment decisions be repealed." (
Standing Senate Committee,
2006,
p.70) This latter recommendation is, notably, a significant move
towards
defending the rights of mental patients to determine their own
treatment
strategies. By supporting advance directives, the Committee implicitly
concedes
that a person should always retain the right to choose, guide or refuse
psychiatric treatments. However, even in an ideal scenario where such
directives were recognized under mental health legislation, advance
directives
would still only empower people who had not yet been declared mentally
ill or
incompetent. This is because, once one has been declared mentally ill,
writing
an advance directive falls into extremely weak and tenuous legal
territory. The
Committee never addresses this. So ultimately, this position further
highlights
the fact that the Committee implicitly regards a person, once diagnosed
as
mentally ill, as not deserving of the same rights as others.
In
the next section, the idea of a charter of patient rights is discussed.
Clearly, any charter of rights which is earnestly developed by users
and
service providers together provides an opportunity for reinforcing and
extending the rights of patients to choose their preferred treatment
strategies
and participate in their own recoveries, in concert with the
Committee's stated
main objective. However, when discussing the right of patients to be
empowered
in their treatment or refusal of treatment, the Committee notes that
"There was support for adopting a legislated patients' charter [of
rights], although it was somewhat less popular with family members and
service
providers than with those living with mental illness." (
Standing Senate
Committee, 2006, p.73) The Committee does not elaborate on the
significance of
this difference of opinion between these three groups, even though it
arguably
strikes to the very heart of the reason such charters are needed—a
person
diagnosed with a mental illness often cannot even rely on the support
of
service providers or family members to defend his or her civil rights.
The
Committee then proceeds to argue against any charter of patient rights
with a
series of peculiar arguments. The Committee argues that such a charter
will
sometimes simply "duplicate" existing legislation. Even though the
Centre for Addiction and Mental Health (CAMH), Canada's leading mental
healthy
facility and research centre, has developed and endorsed a charter that
includes some such reiterations of existing legislation, "[t]he
unnecessary duplication puzzles the Committee." (
Standing Senate
Committee,
2006, p.75) Yet the Committee makes no reference to asking anyone,
from
CAMH or
elsewhere, to address their confusions. But why would it puzzle them at
all?
The vast majority of declarations of the rights of specific citizen
groups
which emerge anywhere from local immigration centres to the United
Nations are
based in part on reiterations of existing legislation. The intent is
for the
declaration to serve as reminder and reinforcement of those rights to
all
involved.
The
Committee also laments that a charter could create "further
stigmatization" (
Standing
Senate Committee, 2006, p.74). As has been
shown
already, being labelled with a mental illness diagnosis automatically
puts one
into a different subclass of society legally, so why would the
Committee object
in this way to a charter which would work to remove some of that
powerful and
very tangible stigmatization? The Committee simultaneously worries that
a
charter could, rather than boosting patient rights, instead foist
"responsibilities" onto patients. In support of this position, the
Committee cites a "
Charter of Adult and Family Rights and
Responsibilities" created by "The Adult and Family Rights and
Responsibilities Charter Committee of Cranbrook, British Columbia".
This
document requires mental patients to do things like, "Pay particular
attention to your own hygiene. Poor hygiene is offensive to others.
Bathe,
brush you [sic] teeth, and wash your hair regularly." It is unclear why
the Committee would even cite such a blatantly insulting and prejudiced
document
not explicitly linked to any major Cranbrook mental health organization
or
described to have ever been adopted anywhere.
Overall,
then, the Committee uses extremely peculiar, under-researched and
flimsy
arguments to dismiss a powerful method of defending patients' rights
which the
BC Ombudsman, the leading mental health facility in Ontario, and many
other
reputable sources had strongly advocated after extensive research and
consultations.
In the
third section of this
chapter, while discussing the mental disorder provisions of the
Criminal Code,
the Committee finally revisits the question of forced treatment
directly.
"The committee heard from many people living with mental illness who
strongly oppose forced psychiatric intervention. Their message was
unequivocal
– imposed treatment is highly damaging to the autonomy and dignity of
affected
persons[.]" (
Standing Senate
Committee, 2006, p.83) This is followed by
extensive quotes reinforcing and elaborating on these issues from
Jennifer
Chambers, Rob Wipond, Francesca Allan and Eugene LeBlanc from witness
testimonies already cited above (
Standing Senate Committee, 2006,
pp.83-84).
The Committee then writes, "In light of these and other submissions,
the
Committee has reservations about involuntary treatment although it may
be
required in very rare circumstances . . . doing so may violate
their
Charter
rights." While this statement sounds like, finally, a very heartfelt
support in defence of the rights of mental patients to refuse
treatments or
choose their own treatments, it is quickly revealed to be merely part
of a ruse
to rationalize actually expanding forced treatment. The previous
statement is
followed immediately with this one:
"Having
said that, the powers granted to courts by the Criminal Code permit
involuntary
treatment in very limited circumstances. Treatment decisions may be
made on
application by the prosecutor for the sole purpose of making a mentally
disordered accused fit to stand trial. Medical evidence must be
presented, the
disposition is limited to 60 days, and neither psychosurgery nor
electroconvulsive therapy may be administered . . . We
acknowledge the
objections
to forced psychiatric intervention . . . We also recognized,
however, the
need to
shorten the period of time that individuals found unfit to stand trial
stay in
the system is pressing and substantial . . . " (
Standing Senate Committee,
2006, pp. 84-85) The Committee then concludes by recommending
increasing powers
under the Criminal Code to forcibly treat the criminally accused.
So
what has happened here? First, it is important to understand that none
of the
above-quoted witnesses were discussing these rarely-used mental
disorder
provisions of the Criminal Code. These witnesses were discussing the
involuntary committals and forced treatment which take place every day
inside
and outside ordinary Canadian psychiatric hospitals under standard
mental
health legislation, and their testimonials make that abundantly clear.
The
overwhelming majority of mental patients in Canada are never charged
with any
crimes under the Criminal Code and indeed are rarely involved with the
mental
health system due to any types of criminal activity, but are diagnosed,
certified and forcibly treated under jurisdictional mental health
legislation.
Yet the Committee never even clarifies this fact, let alone addresses
it.
Instead, these witnesses and their very real and legitimate concerns
are
utterly dismissed by way of a sleight of hand that makes it appear as
if their
concerns have indeed been addressed. The Committee is able to express
"grave reservations" about involuntary treatment, while reassuringly
noting that involuntary treatment is very rarely done under the
Criminal Code
and that there are many mitigating protections of individual rights
under the
Criminal Code. Ironically, none of these listed protections -- the
requirement for
medical evidence to be presented, the 60-day time limit, the
disallowance of
electroconvulsive therapy or psychosurgery like lobotomies -- exists
for
ordinary,
non-criminally-accused people under any Canadian provincial or
territorial
mental health laws. Yet despite supposed "grave reservations" about
forced treatment, the Committee does not discuss this.
Analysis
of the Conclusions and Recommendations in the Final Report
The
Committee made just eight recommendations in the Final Report under the
topic
of "Legal Issues". Four of these recommendations pertain to
increasing public access to the personal medical information of mental
health
patients. Three pertain to increasing powers under the Criminal Code to
give
mental health treatment to accused criminals against their wills. One
recommendation pertains to allowing people to write advance directives
and
appoint substitute decision makers for mental health care (Standing
Senate
Committee, 2006, Appendix A, p.I-II). No recommendations pertain to
limiting
the circumstances under which people can be involuntarily committed, or
to
protecting or extending the rights of ordinary citizens who have been
committed
to refuse treatment or choose treatment options.
So
repeatedly, the Committee exhibits an acute awareness of the abuse of
civil
rights going on in the mental health system and of the general lack of
self-determination over treatment options that most mental patients
have. Yet,
despite their oft-stated intent of helping empower patients in their
own
recoveries, the Committee repeatedly avoids actually tackling this
problem
directly or recommending any kind of reforms with regard to involuntary
treatment laws. Senator Michael Kirby later admitted in a news article
that the
issue of the rights of ordinary mental patients to refuse treatment was
not
dealt with in the Final Report because the Committee considered it
"wildly
controversial" (
Wipond, 2006).
Unfortunately,
even this vitally important point was not publicly admitted in the
Final
Report, let alone discussed anywhere in it. It is a truly stunning
abdication
of responsibility for dealing with what is, arguably, the single most
important
and influential issue in how Canada's mental health care system serves
and
disserves patients. How can we speak meaningfully of “empowering
patients” and
of creating a “patient-centred” mental health system, so long as these
patients’ disempowerment is inscribed into law?
The
Committee's choice to ignore this crucial issue is all the more
concerning in
light of what they do recommend. The Final Report strongly endorses a
wide-ranging expansion of mental health services, recommending that
mental
health professionals be involved in more workplace interventions, more
daycare
and school interventions, more outreach to the elderly, “telemental
health”
initiatives etc. And this is done with absolutely no discussion about
the
prominent role forced treatment plays in Canada's current mental health
system
and the resulting potential dangers of such an expansion for the civil
rights
of average Canadians. In the final analysis, then, Out of the Shadows
at Last" is nothing more than an utterly unscientific, propagandistic
template for indefinite increases of funding to mental health
professionals, and for an unprecedented assault on civil rights in
Canada. Unfortunately,
the Committee thereby missed an extraordinary opportunity to foster
more
balanced and sophisticated discussions and point the direction towards
better
solutions. For example, in 2002 Canada's Yukon Territory overhauled its
Mental
Health Act, and tightened rather than broadened the criteria
allowing
involuntary treatment, focusing more limitedly on only those people
with a
mental disorder who were in clearly imminent danger of causing or
experiencing
"serious bodily harm" (
Yukon
Territory, 2002, s.5(1)). At the same
time, in the
Care Consent Act (
Yukon
Territory, 2003), a
plethora of
tools were created to encourage and facilitate the process of
individuals
developing their own advance directives for mental health care in
conjunction
with care providers, choosing substitute decision makers, and employing
new
guardianship provisions to help maintain control over certain aspects
of their
lives even if having to temporarily forfeit control over other aspects.
While
this still leaves the question as to whether forced psychiatric
treatment is
necessary where incarceration alone would achieve the same stated goals
of
physical protection, at least in this model the protection of
individual civil
rights is going in the direction of a more reasonable balance against
the
augmentation of state interventions.
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Biographical Note:
Rob
Wipond is a professional freelance researcher, writer and journalist
who
specializes in mental health issues. He made a personal presentation
expressing
concerns about psychiatric science and involuntary psychiatric
treatment to the
Standing Senate Committee in 2005.
For
more information:
http://www.robwipond.com